Through the blur, I wondered if I was alone or if other parents felt the same way I did - that everything involving our children was painful in some way. The emotions, whether they were joy, sorrow, love or pride, were so deep and sharp that in the end they left you raw, exposed and yes, in pain. The human heart was not designed to beat outside the human body and yet, each child represented just that - a parent's heart bared, beating forever outside its chest.
I don’t want my thoughts to die with me, I want to have done something. I’m not interested in power, or piles of money. I want to leave something behind. I want to make a positive contribution - know that my life has meaning.
The best way to measure the loss of intellectual sophistication - this "nerdification," to put it bluntly - is in the growing disappearance of sarcasm, as mechanic minds take insults a bit too literally.
Think of it: a disability is usually defined in terms of what is missing. … But autism … is as much about what is abundant as what is missing, an over-expression of the very traits that make our species unique.
But the Beast was a good person...the Prince looked on the outside the way the Beast was on the inside. Sometimes people couldn't see the inside of the person unless they like the outside of a person. Because they hadn't learned to hear the music yet.
I suspect the I.Q., SAT, and school grades are tests designed by nerds so they can get high scores in order to call each other intelligent...Smart and wise people who score low on IQ tests, or patently intellectually defective ones, like the former U.S. president George W. Bush, who score high on them (130), are testing the test and not the reverse.
Why was it considered normal for a girl to live for fashion and makeup, but not car engines or bugs? And what about sports fanatics? My mom had a boyfriend who would flip out if he missed even a minute of a football game. Wouldn't that be what doctors considered autistic behavior?
When you see an object, it seems that you see it as an entire thing first, and only afterwards do its details follow on. But for people with autism, the details jump straight out at us first of all, and then only gradually, detail by detail, does the whole image float up into focus.
I Have a Dream... someday my son, Zyon and ALL individuals with disabilities will be seen as HUMAN beings. I Have a Dream... someday the human & civil rights of individuals with disabilities are honored and they are treated as equals. I Have a Dream... someday ALL parents who have children with disabilities see their child as a blessing and not a burden. I Have a Dream... someday there will be more jobs and opportunities for individuals with disabilities. I Have a Dream... someday there will be UNITY "within" the disabled community. I HAVE A DREAM!!!
I've met so many parents of the kids who are on the low end of the autism spectrum, kids who are diametrically opposed to Jacob, with his Asperger's. They tell me I'm lucky to have a son who's verbal, who is blisteringly intelligent, who can take apart the broken microwave and have it working again an hour later. They think there is no greater hell than having a son who is locked in his own world, unaware that there's a wider one to explore. But try having a son who is locked in his own world and still wants to make a connection. A son who tries to be like everyone else but truly doesn't know how.
On our own we simply don't know how to get things done the same way you do things. But, like everyone else, we want to do the best we possibly can. When we sense you've given up on us, it makes us feel miserable. So please keep helping us, through to the end.
Universities are renowned for their tolerance of unusual characters, especially if they show originality and dedication to their research. I have often made the comment that not only are universities a 'cathedral' for worship of knowledge, they are also 'sheltered workshops' for the socially challenged.
Wearing a cloak is on Rose's list of the thousand things she hates most. The problem is that each of the thousand problems is ranked number one. 'But Dr. Rannigan says you must and anyway, it hardly weighs a thing, it's so full of holes.' I swung mine round my shoulders. Rose hates any bit of clothing that constricts, but I say Chin up and bear it. Life is just one great constriction. 'Ventilated,' I said, 'that's the word. Our cloaks are terrifically ventilated.
I see autism as having many different strands. All of these strands are beautiful. They are all the colours of the rainsbow intertwined intricately into the child. If you try and take away the autism by removing the strands you also take away parts of the child as they are attached to them. Thhey are what makes them who they are. However autism is only a part of them, not the whole. It does not define them. This is for my Tom.
But I ask you, those of you who are with us all day, not to stress yourselves out because of us. When you do this, it feels as if you're denying any value at all that our lives may have--and that saps the spirit we need to soldier on. The hardest ordeal for us is the idea that we are causing grief for other people. We can put up with our own hardships okay, but the thought that our lives are the source of other people's unhappiness, that's plain unbearable.
Q25 What's the reason you jump? When I'm jumping it's as if my feelings are going upward to the sky. Really, my urge to be swallowed up by the sky is enough to make my heart quiver. When I'm jumping, I can feel my body parts really well, too--my bounding legs and my clapping hands--and that makes me feel so, so good.
I hesitate in everything, often without knowing why. How often I've sought – as my own version of the straight line, seeing it in my mind as the ideal straight line – the longest distance between two points. I've never had a knack for the active life. I've always taken wrong steps that no one else takes; I've always had to make an effort to do what comes naturally to other people. I've always wanted to achieve what others have achieved almost without wanting it. Between me and life there were always sheets of frosted glass that I couldn't tell were there by sight or by touch; I didn't live that life or that dimension. I was the daydream of what I wanted to be, and my dreaming began in my will: my goals were always the first fiction of what I never was.
The Internet," [Judy] Singer said, "is a prosthetic device for people who can't socialize without it." For anyone challenged by language and social rules, a communication system that does not operate in real time is a godsend.
I think that people with autism are born outside the regime of civilization. Sure, this is just my own made-up theory, but I think that, as a result of all the killings in the world and the selfish planet-wrecking that humanity has committed, a deep sense of crisis exists. Autism has somehow arisen out of this. Although people with autism look like other people physically, we are in fact very different in many ways. We are more like travelers from the distant, distant past. And if, by our being here, we could help the people of the world remember what truly matters for the Earth, that would give us a quiet pleasure.
And with a relentlessness that comes from the world's depths, with a persistence that strikes the keys metaphysically, the scales of a piano student keep playing over and over, up and down the physical backbone of my memory. It's the old streets with other people, the same streets that today are different; it's dead people speaking to me through the transparency of their absence; it's remorse for what I did or didn't do; it's the rippling of streams in the night, noises from below in the quiet building. I feel like screaming inside my head. I want to stop, to break, to smash this impossible phonograph record that keeps playing inside me, where it doesn't belong, an intangible torturer. I want my soul, a vehicle taken over by others, to let me off and go on without me. I'm going crazy from having to hear. And in the end it is I – in my odiously impressionable brain, in my thin skin, in my hypersensitive nerves – who am the keys played in scales, O horrible and personal piano of our memory.
Would I ever have the courage to tell Wills the truth? That he wasn't just imagining the world was a more difficult place for him to understand than for some of his buddies - that it was, in fact, more difficult for him. That he'd been dealt a rotten hand in that regard, but only in that one regard. Because I wouldn't change one freckle, one misunderstood moment, one tiny piece of him for anything in the world. I would change myself. I would change the things other people said or thought out of ignorance or fear. I would change so many things, but I would absolutely never, in a million years, change him.